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ENGELLİ ÇOCUĞA SAHİP BABALARIN DUYGU DURUMLARI VE İLİŞKİLİ FAKTÖRLER

Year 2021, Volume: 9 Issue: 3, 1131 - 1139, 29.11.2021

Merve Aşkın Ceran Hilal Kurt Sezer Figen Türk Düdükcü

https://doi.org/10.33715/inonusaglik.812704

Abstract

Ülkemizde ortalama 3,5 milyon özel eğitime ihtiyacı olan çocuk vardır. Özel durumu olan bu çocukların ebeveynleri olumsuz yönde duygu değişimi yaşayabilmektedirler. Yapılan çalışmaların genelinde annelerin yaşadığı sorunlara değinilip babalar üzerinde kısıtlı çalışma yapılmış olması nedeniyle bugüne kadar babaların yaşadığı sorunlara yeterince değinilmemiştir. Bu fikirden yola çıkarak bu derlemede engelli çocuğa sahip babaların duygu durumlarındaki değişimler ve ilişkili olabilecek faktörler literatür doğrultusunda incelenmiştir.

Keywords

Babalar Çocuk Engelli çocuklar

References

  • Akandere, M., Acar, M., Baştuğ, G. (2009). Investigating the hopelessness and life satisfaction levels of the parents with mental disabled child. Selçuk University Journal of Social Sciences Institute, 22, 23-33.
  • Aksoy, V., Diken, I. H. (2009). A look at studies that examine the relationship between mothers' parental self-efficacy perceptions and the development of infants whose development is at risk. A.U.E.B.F Special Education Journal, 10(1), 59-68.
  • Aktaş, E. (2010). Systematic analysis of studies shedding light on home care needs of physically handicapped child and family, Marmara University Institute of Health Sciences. Department of Child Health and Diseases Nursing, Master Thesis. Istanbul.
  • Al-Yagon, M. (2011a). Fathers' coping resources and children's socioemotional adjustment among children with learning disabilities. J Learn Disabil, 44(6), 491-507.
  • Al-Yagon, M. (2011b) Fathers’ emotional resources and children’s socioemotionaland behavioral adjustment among children with learningdisabilities. Child Fam Stud, 20, 569–584.
  • Anderson, L. S. (2009). Mothers of children with special health care needs: documenting the experience of their children’s care in the school setting. The Journal of School Nursing, 25(5), 342- 351.
  • Aslan, C. C. (2010). Comparison of psychological symptoms, social support perceptions and coping styles of mothers and fathers with mentally retarded children. Unpublished Master's Thesis, Istanbul: Maltepe University, Institute of Social Sciences.
  • Atilla Demir, S., Keskin, G. (2018) The challenges that mothers of metally handicapped children are facing with: a qualitative research. International Journal of Social Science, 66, 357-372.
  • Aykanat Girgin, B., Balcı, S. (2015). Home care needs of the physically dısabled children and their families. Gümüşhane University Journal of Health Sciences, 4(2), 305-317.
  • Ballard, K., Bray, A., Shelton, E. J., Clarkson, J. (1997). Children with disabilities and the education system: the experiences of fifteen fathers. International Journal of Disability, Development and Education, 44(3), 229-241.
  • Boström, P. K., Broberg, M. (2013). Openness and avoidance-a longitudinal study of fathers of children with intellectual disability. Journal of Intellectual Disability Research, 58(9), 810- 821.
  • Brewin, B. J., Renwick, R., Schormans, A. F. (2008). Parental perspectives of the quality of life in school environments for children with asperger syndrome. Focus on Autism and Other Developmental Disabilities, 23(4), 242-252.
  • Broberg, M. (2011). Expectations of and reactions to disability and normality experienced by parents of children with intellectual disability in Sweden. Child. Care, Health And Development, 37,410-417.
  • Broomhill, R., Sharp, R. (2012). Australia’s parental leave policy and gender equality: an international comparison, adelaide: australian workplace ınnovation and social research centre. The University of Adelaide. ISBN: [978-0-9871950-9-8].
  • Bruce, E. C., Lilja, C., Sundin, K. (2014.) Mothers' lived experiences of support when living with young children with congenital heart defects. Journal for Specialists in Pediatric Nursing, 19, 54–67.
  • Carpenter, B., Towers, C. (2008). Recognising fathers: the needs of fathers of children with disabilities. Support For Learning, 23(3), 118-125.
  • Christopher, C., Umemura, T., Mann, T., Jacobvitz, D., Hazen, N. (2015). Marital quality over the transition to parenthood as a predictorof coparenting. J Child Fam Stud, 13(3), 636-665.
  • Ciğerli, O., Topsever, P., Alvur, M., Gorpelioğlu, S. (2014). Parenting experiences of parents with a disabled child from the moment of diagnosis: Accepting the difference. Turkish Journal of Family Medicine and Primary Care, 8(3), 86-92.
  • Cohen, S. R., Zeedyk, S. M., Tipton, L. A., Rodas, N. V., Blacher, J. (2016). Fathers of children with or without ıd: Understanding long-term psychological symtomps. J Intellect Disabil Res, 60(4), 295- 307.
  • Dabrowska, A. (2008). Sense of coherence and coping with stress in fathers of children with developmental disabilities. PAN, 39, 29-34.
  • Dertli, S., Çevik Aktura, S. (2020). Zihinsel engelli çocuğun orem’in özbakım yetersizlik kuramı’na göre bakımı: olgu sunumu. İnönü Üniversitesi Sağlık Hizmetleri Meslek Yüksekokulu Dergisi, 8(3), 1030-1042.
  • Eldeniz-Cetin, M., Sonmez, M. (2018). Identification of the problems experienced by mothers with children with multiple disabilities. Elementary Education Online, 17(3), 1252-67.
  • Gelgör, F. Z. (2016). The relationship of parental acceptance and control perceived by the mother, father and child and the child's emotıon regulatıon skill. Hasan Kalyoncu University Institute of Health Sciences, Department of Child Health and Diseases Nursing Istanbul.
  • Giallo, R., Seymour, M., Matthews, J., Gavidia Payne, S., Hudson, A., Cameron, C. (2015) Risk factors associated with the mental health of fathers of children with an intellectual disability in Australia. Journal of Intellectual Disability Research, 59(3), 193-207.
  • Golombok, S. (2015). Modern families: parents and children in new family forms. Cambridge, UK: Cambridge University Press. ISBN: 978-1-107-05558-2
  • Haas, L., Rostgaard, T. (2011). Fathers' rights to paid parental leave in the Nordic countries: consequences for the gendered division of leave. Journal Community, Work & Family, 14, 177–1 95.
  • Hauser-Cram, P., Warfield, M. E., Shonkoff, J. P., Krauss, M. W. (2001). Children with disabilities: a longitudinal study of child development and parent well-being. Monographs for the Society for Research in Child Development, 66(3), 1–101.
  • Huang, Y. P., Tsai, S. W., Kellett, U. (2011). Fathers of children with disabilities: encounter with health professionals in a China context. Journal of Clinical Nursing, 21, 198-206.
  • Jarjour, I. T. (2015). Neurodevelopmental outcome after extreme prematurity: a review of the literature. Pediatric Neurology, 52, 143-52.
  • Karakuş, Ö., Kırlıoğlu, M. (2019). Life experiences of having a disabled child: a qualitative research on mothers. SUSBED, 41, 96-112.
  • Lamb, M. E. (2010). The role of the father in child development, 5th edn. John Wiley&Sons, New Jersey.
  • MacDonald, E., Hastings, R. P. (2010). Mindful parenting and care ınvolvement of fathers of children with ıntellectual disabilities. J Child Fam Stud, 19, 236–240.
  • McConnell, D., Savage, A. (2015). Stress and resilience among families caring for children with ıntellectual disability: expanding the research agenda. Current Developmental Disorders Reports, 21, 100–109.
  • Türkiye Cumhuriyeti Aile Çalışma ve Sosyal Hizmetler Bakanlığı. 01.07.2020 tarihinde https://www.ailevecalisma.gov.tr/eyhgm/sayfalar/istatistikler/engelli-ve-yasli-istatistik-bulteni/ adresinden erişildi.
  • Seydel, E. H., Yıkılkan, H. Gorpelioglu, S. (2016). The needs of the relatives of children with disabilities and situations of benefiting from the existing rights and services. MED, 47-52.
  • Takataya, K., Yamazaki, Y., Mizuno, E. (2016). Perceptions and feelings of fathers of children with down syndrome. Archives of Psychiatric Nursing, 30, 544- 551.
  • Türk Dil Kurumu sozluk :01.07.2020 tarihinde https://www.tdk.gov.tr/ adresinden erişildi.
  • Thompson, S., Hiebert-Murphy, D., Trute, B. (2013). Parental perceptions of family adjustment in childhood developmental disabilities. J Intellect Disabil, 17(1), 24-37.
  • TÜİK (2011). Population and Housing Survey. 01.07.2020 tarihinde http://www.tuik.gov.tr/ adresinden erişildi.
  • UNICEF (2013). The State Of The World’s Chıldren 25.06.2020 tarihinde https://www.unicef.org/ adresinden erişildi.
  • WHO Global Disability Action Plan 2014-2021, Better health for all people disability. Geneva, 2015.

Emotional States of Fathers with Disabled Children and Related Factors

Year 2021, Volume: 9 Issue: 3, 1131 - 1139, 29.11.2021

Merve Aşkın Ceran Hilal Kurt Sezer Figen Türk Düdükcü

https://doi.org/10.33715/inonusaglik.812704

Abstract

In our country there are on average 3.5 million children in need of special education. Parents of these children with special conditions may experience negative emotions. The problems experienced by the mothers in general have been mentioned but due to limited study on fathers, the problems experienced by fathers haven’t been sufficiently addressed to date. Based on this idea, this review, changes in the emotional state of fathers with disabled children and factors that may be related are examined in accordance with the literature.

Keywords

Child Disabled Children Fathers

References

  • Akandere, M., Acar, M., Baştuğ, G. (2009). Investigating the hopelessness and life satisfaction levels of the parents with mental disabled child. Selçuk University Journal of Social Sciences Institute, 22, 23-33.
  • Aksoy, V., Diken, I. H. (2009). A look at studies that examine the relationship between mothers' parental self-efficacy perceptions and the development of infants whose development is at risk. A.U.E.B.F Special Education Journal, 10(1), 59-68.
  • Aktaş, E. (2010). Systematic analysis of studies shedding light on home care needs of physically handicapped child and family, Marmara University Institute of Health Sciences. Department of Child Health and Diseases Nursing, Master Thesis. Istanbul.
  • Al-Yagon, M. (2011a). Fathers' coping resources and children's socioemotional adjustment among children with learning disabilities. J Learn Disabil, 44(6), 491-507.
  • Al-Yagon, M. (2011b) Fathers’ emotional resources and children’s socioemotionaland behavioral adjustment among children with learningdisabilities. Child Fam Stud, 20, 569–584.
  • Anderson, L. S. (2009). Mothers of children with special health care needs: documenting the experience of their children’s care in the school setting. The Journal of School Nursing, 25(5), 342- 351.
  • Aslan, C. C. (2010). Comparison of psychological symptoms, social support perceptions and coping styles of mothers and fathers with mentally retarded children. Unpublished Master's Thesis, Istanbul: Maltepe University, Institute of Social Sciences.
  • Atilla Demir, S., Keskin, G. (2018) The challenges that mothers of metally handicapped children are facing with: a qualitative research. International Journal of Social Science, 66, 357-372.
  • Aykanat Girgin, B., Balcı, S. (2015). Home care needs of the physically dısabled children and their families. Gümüşhane University Journal of Health Sciences, 4(2), 305-317.
  • Ballard, K., Bray, A., Shelton, E. J., Clarkson, J. (1997). Children with disabilities and the education system: the experiences of fifteen fathers. International Journal of Disability, Development and Education, 44(3), 229-241.
  • Boström, P. K., Broberg, M. (2013). Openness and avoidance-a longitudinal study of fathers of children with intellectual disability. Journal of Intellectual Disability Research, 58(9), 810- 821.
  • Brewin, B. J., Renwick, R., Schormans, A. F. (2008). Parental perspectives of the quality of life in school environments for children with asperger syndrome. Focus on Autism and Other Developmental Disabilities, 23(4), 242-252.
  • Broberg, M. (2011). Expectations of and reactions to disability and normality experienced by parents of children with intellectual disability in Sweden. Child. Care, Health And Development, 37,410-417.
  • Broomhill, R., Sharp, R. (2012). Australia’s parental leave policy and gender equality: an international comparison, adelaide: australian workplace ınnovation and social research centre. The University of Adelaide. ISBN: [978-0-9871950-9-8].
  • Bruce, E. C., Lilja, C., Sundin, K. (2014.) Mothers' lived experiences of support when living with young children with congenital heart defects. Journal for Specialists in Pediatric Nursing, 19, 54–67.
  • Carpenter, B., Towers, C. (2008). Recognising fathers: the needs of fathers of children with disabilities. Support For Learning, 23(3), 118-125.
  • Christopher, C., Umemura, T., Mann, T., Jacobvitz, D., Hazen, N. (2015). Marital quality over the transition to parenthood as a predictorof coparenting. J Child Fam Stud, 13(3), 636-665.
  • Ciğerli, O., Topsever, P., Alvur, M., Gorpelioğlu, S. (2014). Parenting experiences of parents with a disabled child from the moment of diagnosis: Accepting the difference. Turkish Journal of Family Medicine and Primary Care, 8(3), 86-92.
  • Cohen, S. R., Zeedyk, S. M., Tipton, L. A., Rodas, N. V., Blacher, J. (2016). Fathers of children with or without ıd: Understanding long-term psychological symtomps. J Intellect Disabil Res, 60(4), 295- 307.
  • Dabrowska, A. (2008). Sense of coherence and coping with stress in fathers of children with developmental disabilities. PAN, 39, 29-34.
  • Dertli, S., Çevik Aktura, S. (2020). Zihinsel engelli çocuğun orem’in özbakım yetersizlik kuramı’na göre bakımı: olgu sunumu. İnönü Üniversitesi Sağlık Hizmetleri Meslek Yüksekokulu Dergisi, 8(3), 1030-1042.
  • Eldeniz-Cetin, M., Sonmez, M. (2018). Identification of the problems experienced by mothers with children with multiple disabilities. Elementary Education Online, 17(3), 1252-67.
  • Gelgör, F. Z. (2016). The relationship of parental acceptance and control perceived by the mother, father and child and the child's emotıon regulatıon skill. Hasan Kalyoncu University Institute of Health Sciences, Department of Child Health and Diseases Nursing Istanbul.
  • Giallo, R., Seymour, M., Matthews, J., Gavidia Payne, S., Hudson, A., Cameron, C. (2015) Risk factors associated with the mental health of fathers of children with an intellectual disability in Australia. Journal of Intellectual Disability Research, 59(3), 193-207.
  • Golombok, S. (2015). Modern families: parents and children in new family forms. Cambridge, UK: Cambridge University Press. ISBN: 978-1-107-05558-2
  • Haas, L., Rostgaard, T. (2011). Fathers' rights to paid parental leave in the Nordic countries: consequences for the gendered division of leave. Journal Community, Work & Family, 14, 177–1 95.
  • Hauser-Cram, P., Warfield, M. E., Shonkoff, J. P., Krauss, M. W. (2001). Children with disabilities: a longitudinal study of child development and parent well-being. Monographs for the Society for Research in Child Development, 66(3), 1–101.
  • Huang, Y. P., Tsai, S. W., Kellett, U. (2011). Fathers of children with disabilities: encounter with health professionals in a China context. Journal of Clinical Nursing, 21, 198-206.
  • Jarjour, I. T. (2015). Neurodevelopmental outcome after extreme prematurity: a review of the literature. Pediatric Neurology, 52, 143-52.
  • Karakuş, Ö., Kırlıoğlu, M. (2019). Life experiences of having a disabled child: a qualitative research on mothers. SUSBED, 41, 96-112.
  • Lamb, M. E. (2010). The role of the father in child development, 5th edn. John Wiley&Sons, New Jersey.
  • MacDonald, E., Hastings, R. P. (2010). Mindful parenting and care ınvolvement of fathers of children with ıntellectual disabilities. J Child Fam Stud, 19, 236–240.
  • McConnell, D., Savage, A. (2015). Stress and resilience among families caring for children with ıntellectual disability: expanding the research agenda. Current Developmental Disorders Reports, 21, 100–109.
  • Türkiye Cumhuriyeti Aile Çalışma ve Sosyal Hizmetler Bakanlığı. 01.07.2020 tarihinde https://www.ailevecalisma.gov.tr/eyhgm/sayfalar/istatistikler/engelli-ve-yasli-istatistik-bulteni/ adresinden erişildi.
  • Seydel, E. H., Yıkılkan, H. Gorpelioglu, S. (2016). The needs of the relatives of children with disabilities and situations of benefiting from the existing rights and services. MED, 47-52.
  • Takataya, K., Yamazaki, Y., Mizuno, E. (2016). Perceptions and feelings of fathers of children with down syndrome. Archives of Psychiatric Nursing, 30, 544- 551.
  • Türk Dil Kurumu sozluk :01.07.2020 tarihinde https://www.tdk.gov.tr/ adresinden erişildi.
  • Thompson, S., Hiebert-Murphy, D., Trute, B. (2013). Parental perceptions of family adjustment in childhood developmental disabilities. J Intellect Disabil, 17(1), 24-37.
  • TÜİK (2011). Population and Housing Survey. 01.07.2020 tarihinde http://www.tuik.gov.tr/ adresinden erişildi.
  • UNICEF (2013). The State Of The World’s Chıldren 25.06.2020 tarihinde https://www.unicef.org/ adresinden erişildi.
  • WHO Global Disability Action Plan 2014-2021, Better health for all people disability. Geneva, 2015.
There are 41 citations in total.

Details

Primary Language Turkish
Subjects Clinical Sciences
Journal Section Derleme
Authors

Merve Aşkın Ceran 0000-0002-2296-2572

Hilal Kurt Sezer 0000-0001-8365-0655

Figen Türk Düdükcü 0000-0003-1767-5197

Publication Date November 29, 2021
Submission Date October 19, 2020
Acceptance Date December 10, 2020
Published in Issue Year 2021 Volume: 9 Issue: 3

Cite

APA Aşkın Ceran, M., Kurt Sezer, H., & Türk Düdükcü, F. (2021). ENGELLİ ÇOCUĞA SAHİP BABALARIN DUYGU DURUMLARI VE İLİŞKİLİ FAKTÖRLER. İnönü Üniversitesi Sağlık Hizmetleri Meslek Yüksek Okulu Dergisi, 9(3), 1131-1139. https://doi.org/10.33715/inonusaglik.812704
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